Maybe you've just been diagnosed, or perhaps you have known for some time that you have fibromyalgia but are not satisfied with the results of your treatment. Either way, you probably have questions about what's next.
For Those Newly Diagnosed
The first thing you need to accept about your condition is that it is more like a marathon than a sprint. You cannot manage it all on your own and you will need to do things at your own pace.
Subject to the limitations of your energy and concentration, learn everything you can about fibromyalgia. You may want to start here.
You're going to need a support team, and now is the time to think about who should be on it. Some ideas:
The nature of your team may change from time to time as your needs change.
Obtain a notebook that you can use as a place to record your questions and concerns. There will be days when you won't be able to think clearly because of brainfog - if you record your questions and thoughts you will get more out of your encounters with health care practitioners who can respond to your concerns.
Respect the limitations of your energy and pain tolerance, and learn how to pace yourself. [... More ]
For Those Wanting Treatment Alternatives
A quick tour of the internet will show you that there are an enormous numbers of "cures" and treatments being offered to people with fibromyalgia. Any given treatment will work for some people, but virtually none will work for everyone.
How do you figure out what will work best for you?
Two things are going to help you get where you want to be:
Research shows that people get the best results when they use multiple types of treatments. Try to find a treatment you would be willing to do in each category. Understand that it can take several months of treatment before you will begin to see effects. Be patient and stay committed.